Having a chronic illness isn’t easy. It comes with forgetfulness, fatigue, pain, social consequences, crazy amounts of doctor appointments, depression and anxiety, and big life changes. Not everyone experiences all of these things, but there are certain hallmarks that everyone with a chronic illness experiences even though they may have a variety of illnesses. So here are a few of the most noticeable and relatable parts of having a chronic illness:
You have a chronic illness when
You lost your keys and after searching for two hours you finally find them in the freezer. Thanks brainfog.
Your medication doesn’t fit in your medicine cabinet
Your medical files have to be carried around in a box
You often hear the phrase “I’ve never seen anything like this before” when you go to the doctor
Your doctors’ phone numbers are programmed into your phone
You’re on first-name terms with your pharmacist
Every spare penny you have goes to paying off your medical bills (if you’re American anyway)
You laugh hysterically when someone invites you to participate in a 5k
You have to ask for help when opening your pill bottles-those childproof caps don’t stop children, but they sure stop you
You have yoga pants in every color of the rainbow
You know where the elevators are in every building you go to
When you are used to being told you need a psychiatrist
When someone asks “what do you do for a living,” you just laugh
You have a long wish list of chronic illness related products
You wish you didn’t have to sit around all day resting
You carry around prescription medication in your purse
You found the missing peanut butter in the car and have no memory of how it got there
You try to explain to your friends and family the “spoon theory.”
You forget how to spell your name and have to ask someone else for help
You’d rather die than go to the emergency room thanks to your past ER experiences
You distrust doctors as a principle
You’re used to being told you’re crazy and lazy
Sometimes you can’t think of a word you’ve said a million times
You take more medication than your grandparents
People are always trying to sell you magic cures
You’re exhausted but you can’t sleep on a regular basis
You hate medical dramas because they portray doctors that care
You travel with an entire bag just for your medication
The only people who really understand you are online
It’s a good day when you put on clothes
Just standing up or getting out of bed causes you pain
You feel like you used to be smart and capable, but aren’t anymore
You wake up more tired then you went to sleep
You’re exhausted after taking a shower
You know more about your illness than your doctor does
You’re heating pad is your best friend
These are all the hallmarks of chronic illness that I could come up with. What have you found to be the hallmarks of your chronic illness?
Yes, I know the frustration. My biggest grief would be deciding I am going to do something. In my mind I can do it, but when I try my body won’t respond. For example, playing with grand-kids I will forget and start to run only to end up on the ground because my legs wont do what I want them too.
I hate it when that happens. I wish I could will my body to do what I want!
Man I could relate to every one of these. If I didnt know I had a chronic illness I definitely know now.