In my dreams there is a different world. It’s a beautiful world full of a exquisite colors and patterns. It is filled with delight and wonder. In this world curiosity and deep thought are encouraged and not derided or mocked. In this world people try to understand and empathize with each other. In this world…Continue reading The end of wandering in the darkness, alone (How we can work to create a better world)
Category: Dear Healthy People
How to make decisions about easing up Covid-19 lockdown
Covid-19 lockdown means that at this particular moment I’m watching (and listening to the narration) of my son building a train track. Normally he would never demean himself far enough to play with a toy, but quarantine is no joke and he is bored out of his mind. School is almost out and online learning…Continue reading How to make decisions about easing up Covid-19 lockdown
Being immuno-compromised in a Covid-19 world is terrifying
Being immuno-compromised in a Covid-19 world is terrifying. It’s been a while since I last blogged. At some point I figured that I had run out of things to say and considered giving up blogging forever. Yet for some reason I paid my hosting fees for another year, just to give myself the option of…Continue reading Being immuno-compromised in a Covid-19 world is terrifying
8 reasons why people with chronic pain feel misunderstood
Living with chronic pain isn’t easy and it doesn’t help that many pain suffers feel completely misunderstood. Here are some of the things that people in pain regularly hear, and why they are incorrect. 1. I know what you deal with now because I’ve had (insert minor ailment here) this week. Having the flu or…Continue reading 8 reasons why people with chronic pain feel misunderstood
You know you have a chronic illness when
Having a chronic illness isn’t easy. It comes with forgetfulness, fatigue, pain, social consequences, crazy amounts of doctor appointments, depression and anxiety, and big life changes. Not everyone experiences all of these things, but there are certain hallmarks that everyone with a chronic illness experiences even though they may have a variety of illnesses. So…Continue reading You know you have a chronic illness when
I am Fibromyalgia: What it’s like when Fibromyalgia takes over your body
I know I snuck up on you without your knowing so now that you’re stuck with me I thought I’d introduce myself. Hi, I’m fibromyalgia I’m invisible No one can see me, no one else can feel me, only you can feel my strength and power. I take your energy from you, I cause your…Continue reading I am Fibromyalgia: What it’s like when Fibromyalgia takes over your body
6 ways spoon theory is important in the struggle with chronic illness
One tool people use to explain life with chronic illness is called The Spoon Theory. The Spoon Theory basically says that a person with a chronic illness only has so many spoons available to them, and the number changes from day to day. Once you use a spoon, it’s gone and there’s nothing you can…Continue reading 6 ways spoon theory is important in the struggle with chronic illness
The truth about chronic pain, depression, and suicide
A conversation on my Facebook page about the side effects of living with long term chronic pain reminded me that I needed to address this topic. I’ve avoided it because I don’t like getting too personal or emotional on my blog, and talking about depression and suicide gets really emotional. However, the more discussion I…Continue reading The truth about chronic pain, depression, and suicide
Why insignificant tasks are monumental when you deal with chronic pain
A few weeks ago I was re-reading an old post of mine about loneliness with chronic illness when I read this line and it reminded me of how everything is consequential when you deal with chronic pain: And you, your life depends on how bad the weather is that day, or how long it takes…Continue reading Why insignificant tasks are monumental when you deal with chronic pain
The emotional and psychological impacts of living in constant pain
The emotional and psychological impact of constant pain makes me feel dead inside. No really. I’m sitting here trying to get in touch with my feelings so that I can write a blog post, and I can’t do it because I’ve cut off all my feelings. I’m not supposed to feel sad or frustrated, and…Continue reading The emotional and psychological impacts of living in constant pain