finding comfort when you're having a bad pain day

Finding comfort when you’re having a bad pain day

Bad pain days  take everything out of you. They suck your body and soul dry. You feel empty and destroyed. You try to distract yourself so you can have a better attitude, but the pain is so overwhelming you can’t get past it. You wish you could go to sleep and then magically wake up…Continue reading Finding comfort when you’re having a bad pain day

8 reasons why people with chronic pain feel misunderstood

Living with chronic pain isn’t easy and it doesn’t help that many pain suffers feel completely misunderstood.  Here are some of the things that people in pain regularly hear, and why they are incorrect. 1. I know what you deal with now because I’ve had (insert minor ailment here) this week. Having the flu or…Continue reading 8 reasons why people with chronic pain feel misunderstood

what is chronic pain and why is the definition changing

What is chronic pain and why is the definition changing?

I am in pain every day, every hour, every minute, and every second. I haven’t had a pain free moment in 9 years. The current prevailing literature says that’s because I’m just being emotional about my illness, or that I’m not meditating enough, or that I just want to be in pain. But despite what…Continue reading What is chronic pain and why is the definition changing?

how to make mornings with chronic illness easier

How to make your morning with chronic pain easier

One of the most difficult parts is the morning when I have to get up and get ready despite my chronic pain. I often tell my husband I have enough energy to go somewhere, but I don’t have enough energy to get myself ready to go. It’s just too hard to shower, get dressed, do…Continue reading How to make your morning with chronic pain easier

finding strength when you live with chronic pain

Finding strength when you live with chronic pain

I had a moment of peace the other day. It came at an odd time, certainly not when I would have expected it. I was riding my bike on the way home from picking my son up at school. I do this everyday because there are no sidewalks for him to ride on,and it’s not…Continue reading Finding strength when you live with chronic pain

5 reasons parenting with chronic illness is a good thing

5 reasons parenting with chronic illness is a good thing

Parenting with chronic illness is hard, but overall it can still be a good thing. I originally started this blog because I felt that none of the advice about having a chronic illness applied to parents. (I mean pacing is a great idea, but good luck with that when you have children). People who know…Continue reading 5 reasons parenting with chronic illness is a good thing

I am fibromyalgia- When fibromyalgia takes over your body and your life

I am Fibromyalgia: What it’s like when Fibromyalgia takes over your body

I know I snuck up on you without your knowing so now that you’re stuck with me I thought I’d introduce myself. Hi, I’m fibromyalgia I’m invisible No one can see me, no one else can feel me, only you can feel my strength and power. I take your energy from you, I cause your…Continue reading I am Fibromyalgia: What it’s like when Fibromyalgia takes over your body

6 ways spoon theory is important in the struggle with chronic illness

One tool people use to explain life with chronic illness is called The Spoon Theory.  The Spoon Theory basically says that a person with a chronic illness only has so many spoons available to them, and the number changes from day to day. Once you use a spoon, it’s gone and there’s nothing you can…Continue reading 6 ways spoon theory is important in the struggle with chronic illness

Absolutely no one with chronic pain medicates to zero pain

No one with chronic pain medicates to zero pain, despite what doctors and internet trolls believe. Despite this being a myth, the common view is that the opioid epidemic was caused by pain patients demanding that they never be in pain ever, and so they medicated themselves into painless zombies. This is absolutely ridiculous, and…Continue reading Absolutely no one with chronic pain medicates to zero pain

The truth about chronic pain, depression,and suicide

The truth about chronic pain, depression, and suicide

A conversation on my Facebook page about the side effects of living with long term chronic pain reminded me that I needed to address this topic. I’ve avoided it because I don’t like getting too personal or emotional on my blog, and talking about depression and suicide gets really emotional. However, the more discussion I…Continue reading The truth about chronic pain, depression, and suicide