My name is Shelley and I live in Texas with my husband and two children. I turned to blogging when I was diagnosed with Fibromyalgia in 2011 after years of trying to find the answers to my health problems and being ignored by doctors. Frustrated with being treated like I was crazy and not being able to find a doctor willing to help me, I turned to blogging as an outlet.
Eventually, I was also diagnosed with Lyme Disease, CFS, and Ebstein Barr. Unfortunately, the Lyme went untreated for so long it destroyed my immune system and left me with Fibromyalgia permanently. Now I live with the consequences of all those bad doctors. My Lyme could have been cured at the beginning with one bottle of doxycycline, but now I’m left with being in pain for the rest of my life. I will have fibromyalgia forever because there is no place in the medical system for people like me.
Some of my favorite posts from my blog are:
The Ultimate Guide to Fibromyalgia and How to Treat it
What it’s really like being on opioids for chronic pain
Disabled women in history: Frida Kahlo and chronic pain
How the medical system fails people with chronic pain
Facebook Comments
I'm sorry for your struggles through the beginning stages of diagnosis. It is a constant struggle within yourself. You don't want to accept it because it's not something you can physically see; however, you know it's something because it's something you can feel. Acceptance is the first step in the road to recovery. Now that you have that over, you can start the real recovery process.
Please contact me at http://www.beingfibromom.com if you need any guidance with managing fibromyalgia. I'd be glad to help!
I found your post at the Fibro Friday Linkup at the Fibro Blogger Directory.
Another fibro mom, I can't wait to check out your website!
I have just commented on your last post but felt compelled to read more about you & comment again. I so so feel for you. I had a hysterectomy one and a half years ago. The surgery was fine but I was in immense, uncontrollable pain afterwards. I had nurses telling me I should pull-myself-together etched. As a life long Migraineur I can deal with pain!!! Anyway, finally, now I am being seen by a neurologist & a pain consultant. I have fibromyalgia! During my last migraine attack the outside of the top of my arms were throbbing – I then realised that's where the pain/trigger point is that the Dr pressed & I went through the roof. I just want you to know that you are not alone. I started my blog as a way of doing something positive when I'm stuck in bed, recovering from a Migraine. Telling your story will help other people and that's so good. I know it's rubbish that you have this particular story to tell, but by being brave and putting it out there you don't know how many people you've touched. When I read your blog today – what you don't see – I cried because it resonated so deeply with me. Not that I would wish pain on anyone, but knowing I'm not alone somehow helps. Thank you for being brave enough to speak out when others don't. Sammie x http://www.feastingisfun.com