Self care with chronic illness always feels like an oxymoron, but what is self care? The WHO 1998 definition is: ‘Self-Care is what people do for themselves to establish and maintain health, and to prevent and deal with illness. It is a broad concept encompassing hygiene (general and personal), nutrition (type and quality of food eaten),…Continue reading Practicing self care with chronic illness
7 ways to distract yourself from pain
Pain often takes over everything, it demands to be felt. Despite what the people who think pain isn’t real think, pain acceptance does not make the pain go away. So here’s a few suggestions that might help to distract you from the pain for a short time. A relaxing salt bath A bath can be…Continue reading 7 ways to distract yourself from pain
Stop scamming patients by pretending there’s a cure to Fibromyalgia
Stop scamming patients by pretending there’s a cure for Fibromyalgia. People are tired of hearing if they do “ONE EASY THING!!” all their symptoms will go away, Generic suggestions that definitely do not cure Fibromyalgia Get more sleep Everyone with Fibromyalgia wants more sleep. Fibro patients go to sleep tired and wake up tired. They…Continue reading Stop scamming patients by pretending there’s a cure to Fibromyalgia
Running to the edge of your strength
My dad asks me every time I see him, “how are you feeling?” Every time my answer is the same: I am tired, overrun, exhausted, hurting, and generally miserable. That answer has never changed since I got sick. But the other day he asked me to think about what I was able to do this…Continue reading Running to the edge of your strength
Is fibromyalgia fake? 5 fibro myths debunked
You may have landed on this page because you googled “Is fibromyalgia fake” looking to confirm that someone in your life is a lazy hypochondriac. Well unfortunately for you ( but fortunate for them) fibromyalgia is real. Now don’t get me wrong, Fibromyalgia is overdiagnosed. Many people who have chronic pain issues end up getting…Continue reading Is fibromyalgia fake? 5 fibro myths debunked
I believe you
Recently an acquaintance of mine who has suffered for years from unexplained illness was finally diagnosed. It’s hard to explain to someone who has never suffered from an unexplained illness, but the diagnosis was actually a happy occasion and yet he chose to keep silent. He did not tell most of his other acquaintances or…Continue reading I believe you
Why you should be more worried about Lyme Disease than Zika virus
The world is currently caught up in a panic about Zika virus. We’re all probably correct to be concerned about its effects because it’s a serious disease, but why in America are we all up in a panic about a virus coming from other parts of the world when we already have a serious vector…Continue reading Why you should be more worried about Lyme Disease than Zika virus
8 reasons Fibromyalgia is the the absolute worst
In response to the criticism about my “5 ways Fibromyalgia makes you awesome” post being too positive, I decided to write a counter post. I even upped the ante by coming up with eight things, instead of five! Warning: this post contains sarcasm. 1. It turns you into an idiot Fibro fog takes over your…Continue reading 8 reasons Fibromyalgia is the the absolute worst
5 things to remember when you’re having a good day
I’ve been feeling really good lately. Not normal good, but good for me. For the first time in a year and a half, I do not have a kidney stone and so I’m only dealing with my normal health problems. After multiple kidney stone episodes, my normal problems make me feel like I’m on top…Continue reading 5 things to remember when you’re having a good day
10 unexpected life lessons learned from chronic illness
10 unexpected life lessons learned from chronic illness 1. People are both better and worse than you think Illness tends to bring out the best and the worst in people. You find out very quickly how awesome some of your friends and family are. People will be there for you that you might have never…Continue reading 10 unexpected life lessons learned from chronic illness