I often get questions from well meaning healthy people about what I want from them. I’m not great with words on the spot, so I thought I’d put a list of things I think people with chronic illness really want. 1. To not have to fake being well Many people with chronic illness put in…Continue reading What people with chronic illness really want is to stop faking well
Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Unlocking, Limiting, Studying, Watching, and Healing. UNLOCKING Covid- 19 lockdown seems like it’s going on forever. Even though there are no laws in place keeping me at home, I…Continue reading Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness
7 frequent mistakes made by people with chronic illness
Having a chronic illness is a learning process, there’s a lot of mistakes you make along the way. If you’re like me sometimes you even make the same mistakes over and over again even though you know better. Get a little bit of energy and use it all up cleaning the house It’s so nice…Continue reading 7 frequent mistakes made by people with chronic illness
What it’s really like to be a parent with chronic illness
Parenting with chronic illness is hard, and it’s not something we talk about very often. No one teaches us how to let go guilt, maintain boundaries, or how to interact with our kids while preserving our health. So here’s a few things I’ve learned along the way. 1. Let go of the guilt We all…Continue reading What it’s really like to be a parent with chronic illness
When you have a chronic illness, quarantine life is nothing new
Some of the world is starting to emerge from quarantine, while others are head back into it because of reopening too soon (thanks Texas). But while healthy people get to go back to their regularly scheduled lives, people with chronic illness or disabilities are being left behind. It’s still too dangerous for anyone with health…Continue reading When you have a chronic illness, quarantine life is nothing new
How to recognize the strength and bravery in your suffering
I used to hate being alone. I was always busy, every minute of every day. I didn’t have the time or the desire to be by myself. Being alone only gave me time to think, and I didn’t want that. Then one day chronic illness hit me like a mack truck, and I was forced…Continue reading How to recognize the strength and bravery in your suffering
How to prioritize your health when you have a chronic illness
Having a chronic illness or living with chronic pain can quickly become overwhelming and that’s why it’s important to prioritize your health. Because of this one of the most important things to remember is that it is okay to tell people no. Here are four things to keep in mind when it comes to saying…Continue reading How to prioritize your health when you have a chronic illness
The end of wandering in the darkness, alone (How we can work to create a better world)
In my dreams there is a different world. It’s a beautiful world full of a exquisite colors and patterns. It is filled with delight and wonder. In this world curiosity and deep thought are encouraged and not derided or mocked. In this world people try to understand and empathize with each other. In this world…Continue reading The end of wandering in the darkness, alone (How we can work to create a better world)
Pain Warriors Documentary- The other side of the opioid crisis
Pain Warriors is a documentary that tackles the other side of the opioid crisis ~ that of under-treated pain patients and the slow death of compassion that surrounds them. As pain patients are losing access to opioid treatment there have been an increasing amount of suicides. Legitimate, responsible pain patients are losing access to opioids…Continue reading Pain Warriors Documentary- The other side of the opioid crisis
Is kratom a revolutionary treatment for chronic pain?
As I’ve mentioned previously, I was able to receive treatment for my debilitating chronic pain for years, but lost access to that treatment a few years ago. Once that loss became permanent I decided I need to look into other options. Medical marijuana is not legal in my state, so I had limited choices. I…Continue reading Is kratom a revolutionary treatment for chronic pain?