I’m often asked if Fibromyalgia is as painful as people say, and if so what does that pain feel like? It’s not an easy question to answer because Fibromyalgia and the resulting pain are complicated. However: Yes, Fibromyalgia is incredibly painful It’s not one type of pain, there are multiple ways of feeling that pain.…Continue reading How is Fibromyalgia so painful and what does the pain feel like?
Tag: allodynia
Disabled Women in History: Frida Kahlo and life with chronic pain
This week’s disabled woman in history features the incomparable Frida Kahlo who lived with chronic pain. From the beginning of her life to the end, Frida was a force. I enjoyed every single minute of my research on her. I felt her physical pain, her emotional sorrows, and her triumphs. Frida was someone with lots…Continue reading Disabled Women in History: Frida Kahlo and life with chronic pain
The ultimate guide to Fibromyalgia and how to treat it
Receiving a Fibromyalgia diagnosis can be overwhelming, but don’t worry, while there is no cure there are Fibromyalgia treatment options. I’m fairly confident that in the last ten years I’ve tried most of them! Some work better than others, and each answer is individual, but a Fibromyalgia diagnosis is not a death sentence. So here’s…Continue reading The ultimate guide to Fibromyalgia and how to treat it
Why showering with Fibromyalgia is the worst thing ever
A few months ago I shared on twitter and Instagram that I finally purchased a shower chair, because showering with Fibromyalgia is rough. This was something I put off for years because I didn’t consider myself disabled enough and I am stubborn. Now that I have the chair I feel foolish for waiting so long,…Continue reading Why showering with Fibromyalgia is the worst thing ever
How to find pain free clothing when you have Fibromyalgia
This post includes affiliate links, please see my disclosure policy for details. A few weeks ago I addressed Fibromyalgia sensory overload and the problems that it can create. One of those problems is a high touch sensitivity. Touch sensitivity (called allodynia) makes anything touching the skin painful. This is why scratchy sheets and the wrong…Continue reading How to find pain free clothing when you have Fibromyalgia
How to cope with Fibromyalgia sensory overload
The intense light seems to glare down at me as the excessive noise continues all around me. I feel myself start to become overwhelmed. All I want to do it get home so I can sit in my quiet and dark room. As I rush out of the store someone brushes my shoulder and spikes…Continue reading How to cope with Fibromyalgia sensory overload
What to wear when your clothing causes pain
When you’re living with chronic pain, every piece of clothing you wear has the potential to cause pain. One of the hallmarks of fibromyalgia and chronic pain is skin so sensitive that even the slightest touch causes pain. Many people can develop such hypersensitive skin that it’s difficult to find the right clothing to wear.…Continue reading What to wear when your clothing causes pain
10 best gifts for those living with chronic illness
This post may contain affiliate links. See my disclosure for more details. A few weeks ago I shared my favorite spoonie items that I can’t live without, but today I’m sharing the best gifts for chronic illness. After hearing from other spoonies about what products they rely on I’ve added several new items to my…Continue reading 10 best gifts for those living with chronic illness
10 Unexpected Lessons learned from life with Chronic Illness
These are ten unexpected lessons learned from life with Fibromyalgia, Lyme Disease, and Chronic Pain: 1. Heating pads are not well constructed Seriously. I go through a heating pad every few months. I’ve tried every brand under the sun and they all suck. I honestly don’t know where to find a decent heating pad anymore,…Continue reading 10 Unexpected Lessons learned from life with Chronic Illness