Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Unlocking, Limiting, Studying, Watching, and Healing. UNLOCKING Covid- 19 lockdown seems like it’s going on forever. Even though there are no laws in place keeping me at home, I…Continue reading Unlocking, Limiting, Studying, Watching, and Healing: Support for People with Chronic Illness
Tag: disability
The end of wandering in the darkness, alone (How we can work to create a better world)
In my dreams there is a different world. It’s a beautiful world full of a exquisite colors and patterns. It is filled with delight and wonder. In this world curiosity and deep thought are encouraged and not derided or mocked. In this world people try to understand and empathize with each other. In this world…Continue reading The end of wandering in the darkness, alone (How we can work to create a better world)
Being immuno-compromised in a Covid-19 world is terrifying
Being immuno-compromised in a Covid-19 world is terrifying. It’s been a while since I last blogged. At some point I figured that I had run out of things to say and considered giving up blogging forever. Yet for some reason I paid my hosting fees for another year, just to give myself the option of…Continue reading Being immuno-compromised in a Covid-19 world is terrifying
The only disability in life is a bad attitude (and other nonsense)
I’ve been wanting to write a post on this topic for a long time but didn’t know how exactly to go about it in the right way. A lot of my able-bodied friends are obsessed with their weight and their fitness. I don’t think that their obsessing is super healthy, but it’s not my body…Continue reading The only disability in life is a bad attitude (and other nonsense)
Courage Is Silent: The quiet strength of people with chronic illness
Having courage is an integral part of living a life with chronic illness, yet it’s often overlooked by healthy people. Inspiration porn hides and misshapes the courage of people with chronic illness Inspiration porn is so ingrained in our society most people don’t even realize it. It’s something that people with disabilities and illnesses…Continue reading Courage Is Silent: The quiet strength of people with chronic illness
10 kitchen tools for the chronically ill
I spend a significant amount of my time in the kitchen, which is why I need some tools to help me out. I don’t particularly like cooking, but with a family, somebody has to do it. Plus I like to eat good food, so it only makes sense that I have to spend time producing…Continue reading 10 kitchen tools for the chronically ill
Stop scamming patients by pretending there’s a cure to Fibromyalgia
Stop scamming patients by pretending there’s a cure for Fibromyalgia. People are tired of hearing if they do “ONE EASY THING!!” all their symptoms will go away, Generic suggestions that definitely do not cure Fibromyalgia Get more sleep Everyone with Fibromyalgia wants more sleep. Fibro patients go to sleep tired and wake up tired. They…Continue reading Stop scamming patients by pretending there’s a cure to Fibromyalgia
Why no one cares about chronic illness unless it’s cancer
No one cares about chronic illness unless it’s cancer. Cancer is a society-approved illness, and other illnesses are not. This Saturday I am participating in a fundraiser for Lyme Disease. I’ll be the first to admit that I have not been very pushy about people donating, but basically, my sister was the only person I…Continue reading Why no one cares about chronic illness unless it’s cancer