I often get questions from well meaning healthy people about what I want from them. I’m not great with words on the spot, so I thought I’d put a list of things I think people with chronic illness really want. 1. To not have to fake being well Many people with chronic illness put in…Continue reading What people with chronic illness really want is to stop faking well
Tag: doctors
When your doctor insists you’re faking your illness
Being accused of faking your illness is a right of passage for anyone who lives with a chronic illness. If they don’t outright accuse you of faking, they give you terrible advice. Here are some simple solutions that have been presented to me by various doctors in their true desire to be helpful. 1. Exercise…Continue reading When your doctor insists you’re faking your illness
12 days of chronic pain Christmas
1 Painful flare Life can be hard enough when you live with chronic pain, but getting through the holidays can be even more stressful on the body. Too many things to do, too much pain to do them. 2 Heating pads Life with chronic pain is dependent on heating pads. I currently own two…Continue reading 12 days of chronic pain Christmas
The 4 biggest lies you’ll hear about life with chronic illness
So much of what you hear about chronic illness is lies or obfuscation. You’re constantly being hit with all this information, and not all of it is accurate. You’ll hear things from doctors, friends, family, and even other people with chronic illnesses that just aren’t true. Here are the lies I’ve heard the most. 1.…Continue reading The 4 biggest lies you’ll hear about life with chronic illness
6 things to look for in a Fibromyalgia doctor
Things to look for in a Fibromyalgia doctor Finding a doctor willing to consider a fibromyalgia diagnosis can be a long and difficult process. On average it takes about five years to get diagnosed partly because some doctors don’t believe in fibromyalgia and others aren’t willing to treat a condition with no cure. Being dismissed by…Continue reading 6 things to look for in a Fibromyalgia doctor