Brain fog and fibro fog. It’s arguably the most frustrating symptom of Fibromyalgia, chronic illness, and chronic pain. It’s bad enough to lose control over your body, but it’s maddening to lose control over your mind. What is fibro fog or brain fog? When you have fibro fog or brain fog, you feel like information…Continue reading What is brain fog? Everything you need to know and more
Tag: mental health
How to live hopefully when you have a chronic illness
I’m desperately hiding outside on this gorgeous fall day to avoid my precocious 10 year old who hasn’t stopped talking for 45 minutes. By haven’t stopped talking, I mean he has barely taken a single breath, and certainly hasn’t allowed me to get in a word besides “oh wow” and “that’s cool.” This is my…Continue reading How to live hopefully when you have a chronic illness
When you have a chronic illness you are enough
Guest post by Megan Clark Neville: Megan Clark Neville worked as a children’s librarian at a public library for three years. She published a chapter on Summer Reading Club Programs for Elementary Children through the Texas State Library in 2011. She has been chronically ill for the past sixteen years. She currently lives in the…Continue reading When you have a chronic illness you are enough
Pain awareness and being called to be brave
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Feeling, Grueling, Tempting, Running, and Mending. September is also pain awareness month and so I’ll be filtering my posts through the lens of chronic pain all month. Feeling I…Continue reading Pain awareness and being called to be brave
What people with chronic illness really want is to stop faking well
I often get questions from well meaning healthy people about what I want from them. I’m not great with words on the spot, so I thought I’d put a list of things I think people with chronic illness really want. 1. To not have to fake being well Many people with chronic illness put in…Continue reading What people with chronic illness really want is to stop faking well
What it’s really like to be a parent with chronic illness
Parenting with chronic illness is hard, and it’s not something we talk about very often. No one teaches us how to let go guilt, maintain boundaries, or how to interact with our kids while preserving our health. So here’s a few things I’ve learned along the way. 1. Let go of the guilt We all…Continue reading What it’s really like to be a parent with chronic illness
When you have a chronic illness, quarantine life is nothing new
Some of the world is starting to emerge from quarantine, while others are head back into it because of reopening too soon (thanks Texas). But while healthy people get to go back to their regularly scheduled lives, people with chronic illness or disabilities are being left behind. It’s still too dangerous for anyone with health…Continue reading When you have a chronic illness, quarantine life is nothing new
How to recognize the strength and bravery in your suffering
I used to hate being alone. I was always busy, every minute of every day. I didn’t have the time or the desire to be by myself. Being alone only gave me time to think, and I didn’t want that. Then one day chronic illness hit me like a mack truck, and I was forced…Continue reading How to recognize the strength and bravery in your suffering
How to prioritize your health when you have a chronic illness
Having a chronic illness or living with chronic pain can quickly become overwhelming and that’s why it’s important to prioritize your health. Because of this one of the most important things to remember is that it is okay to tell people no. Here are four things to keep in mind when it comes to saying…Continue reading How to prioritize your health when you have a chronic illness
8 reasons why people with chronic pain feel misunderstood
Living with chronic pain isn’t easy and it doesn’t help that many pain suffers feel completely misunderstood. Here are some of the things that people in pain regularly hear, and why they are incorrect. 1. I know what you deal with now because I’ve had (insert minor ailment here) this week. Having the flu or…Continue reading 8 reasons why people with chronic pain feel misunderstood